When talking to a person with a disability

    If you see someone struggling, you can offer help but don’t be offended if they deny your help because they want to be independent – they’ll figure out away to open that door etc.
    Don’t tell them their an inspiration – unless it’s genuine praise and not patronising – we don’t wanna hear that crap.
    Able bodied and disabled people can date!
    Don’t be prejudice, just because their disability isn’t physical doesn’t mean they don’t have one.
    Invisible illness deserve the same amount of validation as physical ones.
    Some people don’t like sharing their disability so don’t get offended if you ask someone what’s wrong with them and they don’t answer it’s because some people aren’t keen on sharing their life stories with a stranger on the bus.
    Just treat us as if we were able bodied or how you wish to be treated.

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How to cope with chronic fatigue syndrome in the heat.

  1. Don’t beat yourself up if you do fall asleep – you have a genuine condition that’s exasperated by heat.p
  2. Try a cold bath or shower and minty fresh body scrub to stave away that groggy ‘I just got up’ feeling.
  3. If you’re trying to study, open a window and have a nice breeze circulate the room.
  4. Drink ice cold water.
  5. Put ice packs into cushions/ your fave seat or under your pillow – this will stop you from nodding off and cool you down
  6. Invest in a small fan – one that isn’t too disruptive.
  7. Have a 1 hour nap after lunch.
  8. Avoid heavy meals like carbs or roast chicken dinner. Big meals make us feel lazy and it leads us to falling asleep – graze on things like; salad and fruit and energy bars.
  9. Ask someone for a copy of lecture notes and then just concentrate on listening to the lecturer.
  10. Have a good sleep routine I.e I wake up 7:35 and then nap from 1 till 2 and then bed at 8:30
  11. Wear light clothes/ pyjamas
  12. If you know you’re going to be having a long day and night drink a high energy smoothie or have an energy drink (but these can get addictive and you’re likely to crash so, go with the smoothie
  13. If you want to sit outside make sure you’re sitting in the shaded area with something stimulating to do like reading or puzzles.

I hope these help and make the summer heat more manageable guys.

Extreme room makeover: authors edition

So guys I am getting ready to start my course in September. So I needed to get organised pronto! Here is some photos of my room that liven it up a bit. All that’s left to buy is two more blue canvases, blue bedside lamp, and a stick on mirror.

Can’t wait till Monday when I can make my positive affirmations board with Mel, then on Tuesday we’re are tackling my cupboard to try and organise it and make charity donations. Lastly on Wednesday, it’s sorting out any old clothes for the winter charity collections!

Also we’re going to make bath bombs and bath salts and sell them and Christmas fetes!

Cannot wait to do Christmas baking!! and walk the race for life and FINALLY do my degree (It’s going to be keeping my mind off of all medical hurricane it’s going to be happening once I see pain clinic and back surgeon)

I digress, here’s my organised room:

What’s on my kindle? Upcoming doctor appointment and Flash Sale reminder.

  1. The secret Orphan by Glynis Peters
  2. An Orphans wish by Molly Green
  3. 59 Memory Lane by Cecila Anderson
  4. The Mermaids sister by Carrie Ann Noble
  5. A Mother’s secret by Natasha Lester

Hey guys,

I’ve had a few rough days with pain but it’s finally easing. I’m seeing the consultant Thursday and I pray to God that he’s got an action plan because, I refuse to live like this. So I promise you guys that’ll you’ll get an in-depth health update on Friday.


Don’t miss out on my Carefree and Consequences flash sale too. https://www.facebook.com/events/439983676557254/?ti=ia

Photos and videos from my trip to Manchester to see Michael Bublé

That weekend, my dream came true… It has been worth the 12 year wait and pain. Plus, the new wheelchair was so comfortable the entire time. Yes I am in a lot of pain now but travelling via train is so easy in a wheelchair. I just need to make sure the hotel definitely has a hoist before I decide to travel again because, I am in agony!!

Cannot wait to see what ideas my consultant has for my arthritis treatment wise, I’m hanging on like an acrylic nail after a drag queen’s been in a cat fight. Counting down the hours till my next dose of morphine.

——

A little note to the mother of the severely disabled little boy that was sitting next to me and Michael Bublé,

Your son and his vocalisations didn’t bother me at all nor did he getting up out of his wheelchair to dance and all them swinging his blanket round and resting his head on my shoulder,

Sing your son so happy watching Michael on stage was the best thing for me and I’m sorry you can see the whole show because he was tired but, I honestly think you are inspirational parent to go to great lengths to make your son happy. You were subjected to so many eyerolls and complaints From other concertgoers that it really made me angry

Surely your son should be able to experience a concert like everybody else despite his disability?

I thought it was amazing when you decided to share with me your story and how your son had never spoken a word until heard Michael sing 10 years ago. Thank you for sharing that moment with me, a complete stranger I thought it was amazing when you decided to share with me your story and how your son had never spoken a word until heard Michael sing 10 years ago. Thank you for sharing that moment with me, a complete stranger, The love and dedication to your son was obvious I just wish other people understood what you have to go through.

So Jacob’s mum, know that me and Michael Bublé will always be in your corner.

—-

A little note to my friend Robyn who I met on the train,

Sweetie, you’re doing an absolutely amazing job with your three boys and don’t let anyone tell you otherwise or how to parent. We need more people like you working in the NHS, people with kind heart you generally want to be there.

I hope you enjoy your time in Wales visiting your auntie and I hope we get to meet up soon. Just throw me a text whenever you want some adult conversation from somewhere near your own age.

Thank you for the book recommendations too.

A simple trip to Asda: Red Milk, Red Button.

Myself and my carer during my social hours today went over to the local supermarket so I can get my mum some milk. So after we picked up some milk, shower gel, two paperbacks, two lots of feminine products and some melon (and ten cookies, the five were for me and the rest were for the food bank.)

So as we leisurely stroll home I decide I want to go and read in the garden for the afternoon whilst it’s so sunny… Nothing with me is ever simple. I was going down my ramp and it must’ve moved or something because I became wedged and stuck in my wheelchair.. we tried to pull and yank the wheelchair off the ramp and onto the concrete but it’s not having it. So, in the end, I had to press my lifeline and I never thought I’d say this but thank God for them! They managed to put the chair in the Manual Mode and shift it themselves.., I’ve never been so embarrassed in my bloody life I think I need to lay off the cookies and Cake.

They took 20 minutes to come so if you think about it I did have an afternoon in the garden but wedged on the ramp with tea my pink flask. When they came I quickly scurried inside my cheeks red with embarrassment (thank God for the neighbours at work) and I started to read the rest of the afternoon but like me; I slept.

What did I panic or cry when the ramp incident happened like I usually would have? No. As I’m going out now I can feel my anxiety lessening and soon hopefully I’ll be able to go on my own.

I’m just proud of myself that I went to go with the flow and not panic I do not even ring my mum she was actually the first one to ring me this morning to see if I was okay as I was engrossed in the BBC drama years and years!

Great news as well, my new wheelchair is coming Friday so I’m going to be the belle of the ball at the Bublé concert with my new wheels, take that crazy Dave!

Sometimes you Gotta look at the funny of life

Enjoy the sunshine everyone and stay safe. Warning: going to buy red top milk will cause you to become wedged on ramps!! (mind you will has the bloody thing for years I think it’s due a service at least the new one by now.