If you ever need encouragement, this is a positive environment. Have a great week 😀
That weekend, my dream came true… It has been worth the 12 year wait and pain. Plus, the new wheelchair was so comfortable the entire time. Yes I am in a lot of pain now but travelling via train is so easy in a wheelchair. I just need to make sure the hotel definitely has a hoist before I decide to travel again because, I am in agony!!
Cannot wait to see what ideas my consultant has for my arthritis treatment wise, I’m hanging on like an acrylic nail after a drag queen’s been in a cat fight. Counting down the hours till my next dose of morphine.
A little note to the mother of the severely disabled little boy that was sitting next to me and Michael Bublé,
Your son and his vocalisations didn’t bother me at all nor did he getting up out of his wheelchair to dance and all them swinging his blanket round and resting his head on my shoulder,
Sing your son so happy watching Michael on stage was the best thing for me and I’m sorry you can see the whole show because he was tired but, I honestly think you are inspirational parent to go to great lengths to make your son happy. You were subjected to so many eyerolls and complaints From other concertgoers that it really made me angry
Surely your son should be able to experience a concert like everybody else despite his disability?
I thought it was amazing when you decided to share with me your story and how your son had never spoken a word until heard Michael sing 10 years ago. Thank you for sharing that moment with me, a complete stranger I thought it was amazing when you decided to share with me your story and how your son had never spoken a word until heard Michael sing 10 years ago. Thank you for sharing that moment with me, a complete stranger, The love and dedication to your son was obvious I just wish other people understood what you have to go through.
So Jacob’s mum, know that me and Michael Bublé will always be in your corner.
A little note to my friend Robyn who I met on the train,
Sweetie, you’re doing an absolutely amazing job with your three boys and don’t let anyone tell you otherwise or how to parent. We need more people like you working in the NHS, people with kind heart you generally want to be there.
I hope you enjoy your time in Wales visiting your auntie and I hope we get to meet up soon. Just throw me a text whenever you want some adult conversation from somewhere near your own age.
Thank you for the book recommendations too.
As you know I shared a very honest post yesterday about my mental health? Well here’s how I’m going to get better/ be more social:
My carer hit the nail on the head, I associate pain with being out.
Monday: Bath Day – A carer will have my car on Monday for two hours where I’ll be able to run errands into town and keep a personal beauty maintenance i.e.: wax legs, gel polish, hair died, eyebrow wax. I’ll then be able to pick up my writing magazine from WHSmith’s as well as my other periodicals like Cosmo, fiction Weekly.
Tuesday: Bed Bath – I have an hour so I’d like to go for a walk and maybe stop at the garden centre for a cup of tea. Book appointments for my eyes, to see the nurse, hair etc.
Wednesday: Bath day– This will be my library day because even though I like to read books on my kindle I still like to go and see what the library will have to offer. Also I’ll be printing out forms I need for my online degree course and filling out my bus pass form and posting them on the same day so I don’t have to rely on my mum. Perhaps I’ll join the evening bookclub and because it’s lighter evenings I can walk home myself.
Thursday: Bath Day – Skills day. I want to learn to cook a basic meal and practise things when I’m living on my own such as folding clothes, washing up, makeup application, hairstyles and pick out my outfits for the week.
Friday: Bed Bath – My ‘day off’ i’ll try and maintain going for an hour walk after lunch. But this day will mainly be relaxing, again chasing appointments and ordering medical supplies, making sure my prescription hasn’t run out. Plus blogging and book stuff
Saturday: Bath Day – Whilst my parents run their usual errands I’ll get in my chair, go for a walk and spend the rest of the day writing down the garden center. Home by 3:30 so carers can put me to bed – mum and dad respite night.
Sunday: make a point of ringing Sue, Roz, Craig. Check in with the girls on Twitter. Do something nice with family instead of watching sport – F1 excluded.
Why have I put my wash days in bold.?
Sometimes I get so down or in pain that I don’t want to bother with a bath, getting dressed or brushing my hair. This motivates me (this will be printed off and put on my bedroom wall and fridge.
- Have a portion of fruit with every meal
- Have a proper breakfast like cereal or toast
- Toast isn’t Lunch
- Remembering to put fuel in van
- Keeping up with hydrocortisone
- Try and stay up till at least 8:45pm
This plan is halfway to getting back to my bubbly fifteen year old self before my back got injured – the rest is up to me.
Thank you for all the love and support and even though it feels though your worlds falling a part take a breath and take control.
Thanks for the love and support!
Don’t be embarrassed to talk about Mental Health, if you need to – go and seek help.
So today’s quote is from my mother and it’s actually written in the back of one of my many notebooks. She said,
Keep up the positivity and write what you believe and love what you do. – Mum, 2016
My mum, on the whole, is my greatest source of motivation and her childhood memories and anecdotes from the toil of the workplace give me the greatest information.
However, when political writer Oliver Bullough’s came and did a workshop (signed his copy of his book for me!) he said,
It doesn’t matter what you write, write what you love, if it pisses off the gits then that is a bonus.