Flaring big time today

As you all know I want to the hairdressers (before having to jumpstart my car) yesterday and I spent three hours getting my hair done and being pampered the only thing is it my back to be at the basins and to be in my wheelchair for so long. The result? I’m beautiful but, fuck me I hurt.

So today I haven’t even gotten dressed and basically did book promotion from my iPad in between naps and food. Does anyone not eat proper meals when flaring? All I want is seeded toast, bananas and green apple and yogurt,

Before you ask yes I will be taking it I will be taking a diazepam tomorrow to try and reset my body. I don’t even know if I’ll stay awake for Call The Midwife. In my chronic fatigue case I managed to spend £27 on kindle books. so at least I’ll have a lot of books to keep me occupied for a couple of days.

Source: weheartit

The proof copies of my book came for Carefree and Consequence, they look awesome. If you haven’t got your digital copy or paperback there is a link in my blog that will take you there. I always appreciate reviews however small.

I hope my fellow spoonies are okay?

Looking forward to setting up my author bank account for my royalties tomorrow I’m doing taxes with my grandparents. I want everything to be a bit bored so I’m saving every seat related to writing whether that be computer software or stationery. I was surprised at how much you can claim back on expenses.

PS I also applied for a flat in Talbot Green today.. wish me luck!

Lots of love

RM x


Catheter tips

If like me you have a catheter and it can get on your nerves, I thought I’d share some of the pearls of wisdom I’ve picked up over the last three years that might help:

  1. Don’t rely on the bag, if you can use the flip flow instead otherwise you’ll lose strength in your bladder muscle resulting in bypassing. Trust me, I’ve learnt this the hard way.
  2. Avoid fizzy drinks or herbal tea, this can irritate your bladder and result in larger crystals which can restrict your catheter flow.
  3. Learn to love elasticated waistbands. Skinny jeans and catheters don’t mix!!
  4. Try and avoid the trapped wind. It can result in pressure on your bladder and make you bypass! So lay off the sprouts this Christmas.
  5. If you’re at college or at work be sure to carry a spare leg bag in case of blockages.
  6. On long journeys keep a flask to hand in case you need to empty and there are no toilets around.
  7. Change your bag once a week.
  8. If like me and you have a have a super pubic catheter avoid using scented soap – just a gentle wipe every so often with an alcohol wipe is best.
  9. Bladder spasm tablets are your friends
  10. Lastly, be prepared for some blood in your urine and for your site to be extra tender during your menstrual cycle.

Catheter Tips

  • Drink plenty of water and avoid caffeinated drinks and citrus juice.
  • Tight clothes can restrict your flow so I suggest elasticated waistbands.
  • In case of bypassing put absorbent pads under your bedsheets and on top.
  • Try to have regular bowel movements.
  • Change your bag as little as you can, this minimises infection.
  • So that you don’t lose bladder muscle use a flip flow.
  • Clean your wound regularly
  • Twist your catheter regularly so that it doesn’t stick to your bladder wall and makes changes less painful
  • Do weekly flushes so that sediment doesn’t block your pipe.
  • Don’t let your bag gets too full and pull because you can rip your wound and bleed.
  • Change your statlock regularly and alternate between each leg so the skin doesn’t deteriorate.
  • Periods can irritate your bladder – leading to bypassing.
  • Did you know that herbal tea can irritate your bladder?
  • Have patience
  • If you feel self-conscious as to whether you smell of ammonia I suggest carrying a body spray.

I hope these help! Being catheterised is far from easy. A catheter should last twelve weeks but mine only lasts five.