Flaring big time today

As you all know I want to the hairdressers (before having to jumpstart my car) yesterday and I spent three hours getting my hair done and being pampered the only thing is it my back to be at the basins and to be in my wheelchair for so long. The result? I’m beautiful but, fuck me I hurt.

So today I haven’t even gotten dressed and basically did book promotion from my iPad in between naps and food. Does anyone not eat proper meals when flaring? All I want is seeded toast, bananas and green apple and yogurt,

Before you ask yes I will be taking it I will be taking a diazepam tomorrow to try and reset my body. I don’t even know if I’ll stay awake for Call The Midwife. In my chronic fatigue case I managed to spend £27 on kindle bags so at least I’ll have a lot of books to keep me occupied for a couple of days.

Source: weheartit

The proof copies of my book came for Carefree and Consequence, they look awesome. If you haven’t got your digital copy or paperback there is a link in my blog that will take you there. I always appreciate reviews however small.

I hope my fellow spoonies are okay?

Looking forward to setting up my author bank account for my royalties tomorrow I’m doing taxes with my grandparents. I want everything to be a bit bored so I’m saving every seat related to writing whether that be computer software or stationery. I was surprised at how much you can claim back on expenses.

PS I also applied for a flat in Talbot Green today.. wish me luck!

Lots of love

RM x

Arthritis update.

So this morning I got my appointment through to have the steroid injections in my back, it’s next Monday. It can’t come soon enough! I just hope they work, I’m sick of taking morphine with it not doing anything. Hopefully after that my GP will finally put me on some anti inflammatory.

If any of you have any tips of how to manage spinal arthritis please let me know! I’ll try anything!

I’m currently waiting for a new arm chair and waiting to get my wheelchair adjusted. They say that movement is best but when you’re wheelchair bound, that kind of goes out the window. It pisses me off that my body is so complicated!

I have anxiety about going outside just in case it’s cold or wet and I flare up! It’s ridiculous! I know they said winter was going to be tough but I didn’t imagine flare ups every week!

Does anybody else get a headache when your pain flares up?

Please drop me a line, I’d love to get to know some other young adults with the condition.

Love,

Rachel