Hi guys, So as you know I’ve bed. Struggling with my pelvis and hips these past couple of weeks and it’s no better. I spoke to the GP this morning and she’s referring me back to the muscular skeletal clinic where they can assess me and decide what investigations need to be done. I will … Continue reading Me and My Disability: Pelvic Flare update 30.11.2020
Tag: wheelchair
Me and my disability: Pelvic flare up day eight
So guys, as you know I’ve been struggling with my latest flare up and that we are on day eight. This is unusual because my flareups only last 3 to 4 days. I’ve tried everything from diazepam to oramporph, hot water bottles and even physio and yet know relief. So I bit the bullet and … Continue reading Me and my disability: Pelvic flare up day eight
Me and My Disability: Hoisting Horror & DPD Debarcle
So as you’ll have learned from my last post on Monday we had a power cut and my mum must have put the hoist up too high after hoisting me on to my bedroom transfer chair and unfortunately it jammed. Also, because of the powercut the hoist needed to be reset. So of course, this … Continue reading Me and My Disability: Hoisting Horror & DPD Debarcle
Me and my disability: Power cut in Pyle
On Monday night just as the final player on The Chase was doing the cash builder round, our whole street had a power cut. This meant my stairlift and hoists weren’t working as well as the heating and the cooker so the carers couldn’t put me to bed and we couldn’t cook any food. The … Continue reading Me and my disability: Power cut in Pyle
Book Review: I have no secrets by Penny Joelson
Genre: Teen/Ya Rating: 5/5 Plot: Fourteen-year-old Jemma has severe cerebral palsy. Unable to communicate or move, she relies on her family and carer for everything. She has a sharp brain and inquisitive nature, and knows all sorts of things about everyone. But when she is confronted with this terrible secret, she is utterly powerless to … Continue reading Book Review: I have no secrets by Penny Joelson
Things I love and hate about having a disability
Things I love: Skipping queues Clean disabled toilets Raising awareness of my life and helping others with my blog. Priority boarding on flights Being on a train and the only accessible one is first class. Not having to get up to pee every half an hour Nice physio therapy massages Hunky doctors When someone says … Continue reading Things I love and hate about having a disability
My disability: New med regime
Hi gang, It’s been awhile since I’ve written a disability update as everything’s been calm.. up until last week. My back and pelvis flared up and not even diazepam or oramorph together was helping. Yesterday I spoke to the doctor and he’s upped my oramoph from 2.5ml to 5ml and put me back on MST … Continue reading My disability: New med regime
Disability: Help my friend Emily get a new wheelchair
Please share and help my friend Emily get a lightweight wheelchair. Go follow her on Instagram too: https://instagram.com/ableemily?igshid=a1sysnvtwwbf Below is the link for her fundraising page, even if you can’t donate financially you can still help by sharing her links on your social media pages. https://www.gofundme.com/f/8ycgn-a-new wheelchair-for-emily
The internet and my disability: Why I decided to blog
I began my foray into blogging in 2013 when I started the tumblr blog uniquelyunable. I realised that they internet could connect me with people who are in similar situations to myself and that I could put my love of writing into practice as an outlet for my frustration at the lack of support for … Continue reading The internet and my disability: Why I decided to blog
The first 72 hours of 2020
Now I know this isn’t major news but I feel the need to celebrate these four things: I am now 48 hours in on my new healthy eating regime and loving it. I even took a pack lunch to the garden Center to meet an old friend so I wouldn’t be tempted to buy cake … Continue reading The first 72 hours of 2020